Another “Why Me Lord ” day

Those of you who read “Why Me”know that when things go wrong my husbands expression is “Why Me Lord”. He repeated those words several times yesterday. 

Let me  fill you in with the details leading up to this stress filled day.  My Hubby  Daniel {as he is known in my memoirs}  has been on a life saving heart medication  from the time he was admitted through  emergency to South Lake Hospital in  Newmarket–  after his  implanted  defibrillator activated. This horrendous event happened nearly two years ago In the lake by the cottage while he was waterskiing. Doctors had said he was able to waterski.  He received his first shock  after he dropped into the water and was about to climb into the boat. We pulled him in and it was a shocking experience in more ways than one,  for all of us who where in the boat. The defibrillator delivered nine more jolts which we all felt. After the 7th shock , Daniel passed out. I was sure we had lost him for ever. Thankfully the defibrillator brought him back to the land of the living.

      About ten years ago he was put on  the medication of choice to control racing hearts. However this medication partially destroyed his lungs and he could no longer take it. After the shocking incident something had to be found to prevent his heart from beating out of control. After much deliberation the doctors at South lake in conjunction with our beloved cardiologist who is affiliated with a Toronto hospital decided to put him on a medication that we were told could only be distributed through South Lake Health Centre. This miracle drug works well for Dan. Things went smoothly until a few months ago. Every three months the drug was sent to us. Then all of a sudden they said only a months supply could be issued at a time. We would receive the meds just a day or two before his previous months medication ran out. Three days ago we heard from the health centre stating that they would no longer dispense the drug to us unless we were seen by the cardiologist in charge at their hospital. They booked us an apointment for Thursday even though we told them that Dan had recently been seen by our cardiologist and that we had an apointment for Wednesday {yesterday} at Sunnybrook hospital at the arrhythmia clinic for his regular checkup .The nurse for the South Lake Cardiologist called us back and said they were cancelling Dans apointment and faxing a note to the Arrhythmia clinic at Sunnybrook to enable them to manage and dispense his medication. We spent almost 5 hours there. After the device was checked we had to wait for the cardiologist who was on call to finish his rounds to talk to us.   He told us that he didn’t think that he could do anything and if he could it would take months to get it arranged. I panicked . They had cancelled Dans appointment at SouthLake hospital and as luck would have it, our cardiologist is out of the country until September.

  The Sunnybrook doctor told us -and this was collaborated by a pharmacist friend of mine -that this drug is not an approved drug in Canada and is on a special access program. This drug is in abundant supply in the U.S. and this is where the Canadian government gets their supply. According to the Sunnybrook  doctor he has five patients waiting to be put on this miracle drug, but it will probably be years before any of them will be approved. {They should live so long} However once a patient is approved for the drug they can not be bumped from the program. We just have to figure out how to get it. Hopefully things will work out. We spoke to South lake again and they will send out this months supply and they promised to contact Sunnybrook and work something out between the two hospitals for the future.

Ohip is short of money and the government is trying to cut costs.Many patients are suffering not only with this medication but cuts with other prescriptions as well. I do not know what the answer is but it is upsetting.



About epsnider

E.P SNIDER is the pen name that I used to publish "WHY ME- a memoir". I used a pen name so as not to embarrass my spouse, my offspring, their offspring, my grand dogs and my friends. A dream came true when I had my first book published at the age of sixty-nine. "WHY ME? "is a collection of memoirs recounted from various stages of my life and the lives of those that I love or like at least some of the time. Most of the incidences are humorous-some are not. I am a senior but I feel more like a junior except for the aches and pains. When I look in the mirror I often see my mother or some other aging lady with wrinkles and sun spots. The amount and depth of wrinkling depends on which mirror I am looking into, the degree of lighting and how well my skin absorbed the moisturizing cream that day. Although I am mature in years, maturity is definitely not one of my virtues. If something strikes me as funny I get the giggles. Most of my family and many of our friends have a rather warped sense of humour-so I giggle a lot. Laughter plays an important role in our lives. My friends were a significant inspiration for me to begin my writing career. For the past number of years hubby and I have been spending part of the winter season in Florida to escape the sometimes bitter cold climate in Toronto Canada. Every year I send emails to those left behind. To my delight they find my emails to be hysterical and a cure for their winter doldrums. They compare my style of writing to that of the late Erma Bombeck. For those of you not familiar with the author-- she was a beloved American humorist in the 1970's and 1980's. I have loved literature and creative writing from an early age. I spent some of my growing up years in Alberta and won a prize for a best poem commemorating Alberta's bicentennial year. My grade seven teacher was a large and forceful woman, with white hair and course bristly white chin hairs to match. We were all intimidated by her and thus listened intently as she drilled us about parsing sentences and adverbs and adjectives. She provided me with a good basis of the English language. In addition to "Why Me" I have had a short essay published in a book of assorted memoirs by Canadian woman. I currently write for our Toronto Condominium newspaper. I hope to do more writing, although I am not sure if my family can cope with any more of my meltdowns when blocks of written material mysteriously disappear off of my computor. I admit I am computor and electronically challenged, but I will persevere. - - - - - - - - - - - Writing has been a passion of mine through out my life. Ever since I took a step forward and entered into the world of computers, a new world of opened up for me. I found myself engrossed in writing emails with lengthy updates about my life's recent highlights. To my delight, people found me...funny! I then offered to write for my condo newsletter, and I recently had a short memoir published. For the last several years I became glued to my computer, transferring my hand-written life adventure notes to an actual story of my life's defining moments. Finally, at the age of 69, I was done... I wrote a book! AND it's actually published. People are reading it. People are enjoying it. I am thrilled! Plus, it's one of the greatest gifts I could ever give my family. Talk about a dream come true. My advice to you: Think positive, keep your eye on the prize, and you too can enjoy as your dreams and desires come to fruition.
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